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Showing posts with label Terry Crawford Palardy. Show all posts
Showing posts with label Terry Crawford Palardy. Show all posts

Friday, April 4, 2014

You Tube Book Promotions

When you self-publish a book, you not only write the book, publish the book, reconfigure it for an e-book edition and purchase books for local gift shops, libraries and the like: you also market the book.

Promoting it via local advertisements, local author events at libraries, or book signings at gift shops that are willing to stock your book ... or social media such as Facebook, Linked-In, blogs, websites ... or free copies in coffee shops, or to friends and family with a request that they share it with their friends and families ...

Sometimes, the marketing gets in the way of the writing. Sometimes the author tires of it. More often the author's circle of friends and family tire of it. And the books fades into the shadows of busy lives.

You Tube offers authors a way of providing self-promotion that is not intrusive. Video's can be viewed at the viewers' convenience. Weather is not an issue. Allergies are not an issue. Absence is not an issue.

But there are a lot of books out there to be read. And a lot of authors asking for your time and attention. 


My previous post brought my characters, Helen and Henry to life. This post will, optimistically, bring me to life, at your convenience. 

Our town cable tv station posts its videos at You Tube, which benefits us all.

Will you tune in to my most recent? You'll find it here:  https://www.youtube.com/watch?v=uh8vZp8XiE0

I'd love to hear from you, either here in the comment section, or via email at needlesandpens@comcast.net.

If you want to meet me in person, visit Buttonwoods Museum in Haverhill, Massachusetts tonight at 6 pm for a poetry reading. I'll be there next month, too!

Be well! 
                            ~ Terry

ps - if you've lost my book shop link, it's here.
Oh - the Amazon link: that's here, too.
And you can always stop by the shop to pick some up. 


Sunday, July 21, 2013

Multiple Sclerosis, Melanoma and More


In response to Multiple Sclerosis, an Enigma readers' questions and expressed wishes to follow more of Terry and Rick's continuing story, Multiple Sclerosis, Melanoma and More is introduced. 

The sequel is now available on Terry's new author website: http://www.TerryCrawfordPalardy.com

It is also published in print (paperback) and Kindle form, at Amazon: Click here.

Smashwords also has made it available for other ebook format: Click here.

Thanks for shopping with me at my new website! 

 You can find me easily at the New England Authors Expo at the Danversport Yacht Club on July 31, 2013 (open to the public, free, from 4 to 9 pm.) Just look for my new banner!


Wednesday, September 19, 2012

Reviewing by Indy Authors

I've received another Five Star review of my book, Multiple Sclerosis an Enigma. This is written by a fellow author, Philip Nork. Here's what he wrote:

Sept. 19, 2012

I just finished MultipleSclerosis, an Enigma by Terry Crawford Palardy and am sitting at my desk in a fog. This heart-felt memoir of a person diagnosed with MS and her battle to live a “normal” life has me re-thinking my own life.

The courage displayed, along with the confusion as to why, was portrayed brilliantly. As I read it, I felt like I was sitting with the author at a table or on a front porch, sharing a beverage, as she told me her story.

There were times I laughed and cried while in the pages of this book. It also took me back to the days when my grandparents were in the same situation … a different disease, but the same situations.

The author says, “Water doesn't try to choose a direction ... it just follows the water before it, rushing over the same rocks that were submerged in high water and exposed in drought last year, and ten years ago, and maybe fifty years ago. Nature is content to follow its established route. Only when man intervenes does the direction of the water have to change, finding and following new paths. Sometimes, the stream is strong enough to return to its own, natural path, to the dismay of those who had built in its original path.”

I take this to mean that nobody knows what is in store for them in this thing we call life. We can try to change the course of events by medicine or other things that the “professionals” prescribe, but the best things we can do is accept what fate delivers and deal with it in our own special way.

This book can help those diagnosed with diseases they don’t understand by letting them know they’re not alone. But at the same time, it can help those who are healthy by letting them into the “secret” life others may be in.

I am so glad I read this book.
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Friday, July 6, 2012

Nine Pages of Reviews for My Books

I'm happy to share with you many reviews of my books, posted at Goodreads, Amazon, and Smashwords. A few books have only one, one has five, and another has more than ten. There are two titles yet to be reviewed by readers. I trust that in time they will be. Here are the responses from my readers ... thank you so much for helping me by reading and reviewing my work. I've included comments whether strong or weak, as I glow through the strong reviews, and grow through the weak.


Readers’ reviews of Terry’s Books


Teaching: Education and Academics at the Turn of the Century
A Thoughtful Read August 22, 2011 Five Stars
By DP
Format:Paperback
This collection of essays presents key issues in education to both parents and educators in an approachable, easy going manner. Ms. Palardy's writing is grounded in her long career as an educator and a parent and this book is appropriate for both. She uses common experiences and dialogue to delve into topics ranging from education reform to the usefulness of homework and the rank book. The development of each child intellectually, socially and emotionally is a common thread. As an educator, I am familiar with the topics she takes on, but her writing led me to look more carefully at my own practice and approach. Though the pieces were written a few years ago, the ideas continue to be very relevant today.

Teaching in Action July 22, 2011 Five Stars
Format:Paperback
As a parent, teacher and administrator, I found "Teaching" to be a thoughtful and insightful reflection of issues that transcend teaching and learning. Each article speaks to the social, emotional, and academic concerns facing students, parents, and teachers. The author, Terry Palardy, is obviously an experienced educator. Her understanding of young adult learners is to be applauded.

Exploring Issues in Education December 20, 2011 Five Stars
Format:Paperback|Amazon Verified Purchase
In "Teaching: Education and Academics at the turn of the century," Terry Crawford Palardy writes with compassion, care and love for her profession and her students. They must have been lucky to have her as a teacher.

In a series of essays, Palardy explores timeless educational issues from her experienced perspective. She asks pertinent questions from varying perspectives. In Pendulum, we get a subtle, yet painfully accurate warning that the educational trends swing to extremes. (The current top-down business model of education may have been avoided if those who create education policy were forced to teach elementary school for one year.) Her intelligent writing explores various methods, addresses the intricacies involved in grading and grade inflation, and ends with a discussion with the principal demonstrating educators concerns for more than just academics. I was reading Diane Ravitch's "The Death and Life of the Great American School System: How Testing and Choice Are Undermining Education" concurrent with "Teaching: Education and Academics at the turn of the century," alternating between the two and on a couple occasions, I forgot which I was reading. That puts Palardy in very good company. Palardy is now retired and she is reflecting on her career in education. Let's hope she continues to shed light on an often misunderstood profession.

I am always a bit apprehensive when a fellow writer has favorably reviewed my fiction and then later I review their own work. The task was made easier because "Teaching: Education and Academics at the turn of the century" is nonfiction, and I write mostly fiction. Still, in this case, it's even more satisfying to enthusiastically give five stars.

Jeffrey Penn May, author of "No Teacher Left Standing" 



Gina rated it Three Stars out of Five
Shelves: first-reads
The problems that plague today's schools are clearly elucidated in this book. It was nice to see a book that didn't sugarcoat the problems and that wasn't afraid to call out certain contributing factors to those problems (e.g. parents). I would've enjoyed seeing more ideas for solutions as to how to fix the schools and the problems that exist within them in the modern age.

Jennifer Ware rated it Two Stars out of Five
Shelves: goodreads
I received this book for free from goodreads.com. I was kind of disappointed in the length and depth of this book. I had intended to give it as a gift to a teacher if I won it. It seemed there could have been more research put in to it.



Multiple Sclerosis, an Enigma

 From: another Terry (not the author)
Five out of five stars: A Must Read for MS patients, families and friends, January 16, 2012
By 
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)
Wow, this was an amazing book...

At this moment, I'm sitting here stunned.
Stunned because I've finally received answers I've needed for the longest time.
Stunned because I've connected to another soul with many of the strange, uncommon symptoms I've experienced, some since childhood.
Stunned because
I no longer feel alone with the monster known as MS...

This lady's story could be mine, or one of many others. She has successfully put into words, the things we wish we could say about the struggles associated with MS, but oftentimes, cannot express through mere words.

Mrs. Palardy has written an honest, painful, at times heartbreaking account of her journey through life, MS, and the assortment of medical testing and treatments. She has faced the issues in her life head on with courage, strength and personal fortitude. Terry is by no means a victim, but a slayer of this dragon. Her husband, a true knight in shining armor, stands strong by her side, supporting her, facing everything this ugly disease can throw at them.

This is an honest, important, inspiring, empowering book, which will help anyone with MS, and will bring knowledge and a deeper understanding to the loved ones and friends of those with the disease.

Thank you Terry for this gift you have given. Your story and courage has made a difference in my life.


Susanna Mahoney's review
Jul 04, 12

Read in June, 2012 Five Stars

This story is a honest look inside the world of a multiple sclerosis patient and woman trying to adjust to the MonSter.It is a good beginner's guide about plotting through the world of auto immune diseases. She is honest and refreshing sharing her thoughts with the readers and tells the pros and cons of this vague disease. She has a strong support system and knows how to advocate to the physicians for the treatment all ill individuals deserved. I like the upbeat positive attitude she is developing along her journey to transform her life from a Type A personality to a mellow lady with an I do not care attitude who lives for each day.

She was brave enough to put in the Almighty's hands and release herself from Western medication and look for a better approach to deal with the symptoms of loss muscle and cognitive capabilities. She explains how it affects her and her husband and the adjustments they made to learn how to dance and not be furious with the personal storm some of us experience every day. Kudos for sharing your experiences and trials with others who might have just received the news "You have MS". This is a good book to start to come to terms with the diagnosis of any autoimmune condition.

Carmen Ambrosio's review
Mar 28, 12

Read in March, 2012 Five Stars

Bookended by the challenging generational demands of growing children and seriously ill elderly parents, dedicated educator Terry Crawford Palardy put everyone else's needs before her own for years--even as she experienced perplexing neurological symptoms.

Fluid dialogue and vivid descriptions reveal the author's protracted, diagnostic odyssey. Readers share alongside Terry the physical and emotional toll of getting to and through physician consultations, diagnostic procedures, tests, and treatments. The escalating frustration, confusion, and fear she feels when she interacts with certain medical, pharmaceutical, and insurance company staffers may be familiar to others who have a chronic illness or their caregivers.

Finally, Terry connects with doctors she trusts. A once elusive MS diagnosis becomes definitive. Throughout her ordeal, Terry resolves to preserve her dignity. She is bolstered both by her religious faith and by her husband's consistently calm, reassuring presence. His devotion to her is the embodiment of unconditional love. Despite losses and lingering unanswered questions, Terry remains true to her conviction to decide treatment options for herself.

When I finished the last chapter, I applauded Terry's determination to deal with multiple sclerosis on her own terms. It was a rousing ovation I hoped somehow she could hear.

Merita King's review
Dec 11, 11 Five Stars

Read in December, 2011

This book is a clear account of the author's own experiences. Terry takes us through each step of her journey in a detailed and straightforward way, without the 'pity me' overtones that such books so often contain. During the course of reading this book I felt that I really came to know Terry in quite a personal way, and that I like her for her strength and no nonsense attitude to her experience. She describes in plain detail each step on her journey through diagnosis and treatment and you cannot help but feel her frustration alongside her as she deals with each new crisis as she fights to find a way of coping that feels comfortable for her.

Anyone going through their own journey with MS will find an immediate connection with Terry. Her story can only serve to help others going through similar experiences who may be lost and anxious and frustrated at the lack of empathy displayed by the medical fraternity. Those who have loved ones with MS will find this book a valuable resource in helping them towards a closer understanding of those they live with and look after.


Carol's review
Jan 13, 12 Five Stars

Recommended to Carol by: Ms Palardy's review
Recommended for: Anyone who has MS
Read in January, 2012, read count: once

Read your book and I have so many mixed emotions at the moment. Tears came to my eyes more than once. Terry you are such a courageous woman. All the trials and tribulations that were endured by both you and your husband are unbelievable. You stayed true to yourself throughout and never ever gave up. Never once did you forget about your students and the obligation you had to them as their teacher. This is excellent account of how MS can control one's life if you let it but once you begin to understand it's invasion adjustments may become acceptable. Wish I could have given a much higher rating, it deserves much more. For those whom have MS (Or knows someone with MS), I urge you to purchase this book.

Shane Cormier's review
Mar 25, 12
Five Stars

I entered this contest for my aunt. It took her a while to read it because of her condition but she finally emailed me to tell me what she thought. She wanted me to thank the author for allowing me to win this and that although she is in really bad shape, she said it gives her hope. I believe that she is going to be trying some of the steps that Terry took and will run some by her doctor as well. And she said she is going to start a journal to occupy her mind. Tv is getting old she said. All those channels and nothing to watch. LOL Her words Not mine. Sorry it took so long Terry. And thanks for the book. It put a smile on my aunts face and gave her some hope.

5.0 out of 5 stars A book for anyone with a disease without a cure., January 19, 2012
By 
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback) 
This book is a must for anyone with MS or a friend or family member of a MS patient. It gives insight into the everyday tribulations of this disease, but it is also a valuable book for anyone with a disease which has no cure and tends to be progressive, for it is a book that not only tells about MS, but how one brave person faces the hardships and frustrations of having such an illness. Being an MD I would highly recomend this book to patients suffering one of several such diseases.


5.0 out of 5 stars A love story in comparison to no other...., April 8, 2012
By 
Amazon Verified Purchase(What's this?)
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback) 
This book took me so many places. It reminded me when a family was not just man and wife but ALL of them family as I was raised and is so forgotten in today's day and age. We live in a time and space where inconvenience is swept under the rug and when there is too much clutter under the rug heck throw out the rug and get a new one. This love story is real commitment to parents, brothers and sisters, children and how the Palardy's lived their lives; putting themselves last but each other before the other.

As I was reading the story and I could feel Terry's frustration I have known it so many times during the terrible years of diagnosis then follow ups and appointments, relentless arguing with Insurance companies and then finding out not to be covered for a particular treatment or medication. There is a moment in the book when the author is going through all of this and she hands the phone to her husband Rick and he takes over from there and you just think; he most definitely is her knight in shining armor.

I would highly recommend this book to any one facing possible MS diagnosis or a family member or caretaker. It is also a great guide, spiritual awakening and support for those facing tough decisions about elderly care and real hard questions and answers to different care options that this family has to go through with both sets of parents.

Overall and more so than any of the things I mentioned above it is a love story. It is a story of commitment made between two people when they were young, vibrant and full of life to their resolve to any obstacle that crossed their path and they triumphed over. Not a triumph of a finish line but a resolute triumph of life, real life not the white picket fence with sugarplum cookies but the real life and burdens that we tackle everyday some try to sweep that "real life" under the bed, others turn around and sprint the other way, others like Terry and Rick sing a melody that only two heart as synched as theirs could dance to; it is in my opinion a true love story.

5.0 out of 5 stars Much more than expected..., January 16, 2012
By 
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)
This brief book is much more than the title suggests. It is a love story, a family drama, an ode to having old school work ethic, and a moving description of dealing with chronic illness. Terry Palardy has put into print many of the experiences shared by people with a chronic illness: anxiety filled tests to determine diagnosis and progression, managing schedules and multiple doctors, maintaining personal standards at work and at home and the heart wrenching conversations trying to make sense of it all. Those who recognize themselves in her words will find the comfort of shared experience but equally important is the potential impact it may have in helping family and friends understand as well.

5.0 out of 5 stars Multiple Scerosis An Enigma, April 30, 2012
By 
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)
I found this a very illuminating story. A very personal account of disease, disability, and the failure of the medical system to be able to deal with it. There are a great many diseases, and people in this same situation who would find this helpful.

5.0 out of 5 stars Multiple Sclerosis, an Enigma, March 29, 2012
By 
Amazon Verified Purchase(What's this?)
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)
Amazing! As I read along, I felt I was walking right beside her. In the story you could see that she was sticking to her recollections of symptoms throughout her life starting at an early age. And as I stated to her, I wonder also, were her family members misdiagnosed and had MS as well. We will never know. I felt comfortable walking beside Terry through her journey as I felt she had my heart in hand. I admired her for many years, but now is "special" to me! Quite brave to share such intimate details along this struggle we all experience in the Dragon of MS.

I recommend to all with MS and friends/family of someone suffering from MS!

Beautiful Read!

5.0 out of 5 stars An important novel, March 16, 2012
By 
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)
Terry's memoir is a story of courage and hope. It's so well-written that I feel I know the author personally. She writes of her life which was interrupted with the diagnosis of multiple sclerosis - a debilitating disease.
It's important for anyone who is newly-diagnosed or for family members, caregivers, friends to read this novel and get a good understanding of how MS can shake up a person's life.
Kudos to Terry for writing and sharing her innermost thoughts on her disability.


4.0 out of 5 stars Going Forward Together, June 15, 2012
By 
Amazon Verified Purchase(What's this?)
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)
Terry Crawford does an exceptional job humanizing all of the aspects of diagnosis from the perspective of the patient. Is this the correct diagnosis? What about other diseases with similar symptom profiles known to run in the family? While dealing with all of those issues, her story simultaneously describes the impact of MS in our society where definition is so often derived from profession. Her story is one of a school teacher not wanting to take time off, even to deal with her own health issues. How many of us want to leave a job seen as a vocation? How do we make the decision to do so? Then what do we do next?

While I have read many stories recounting the doubts of diagnosis when it comes to MS, I think this book could justifiably be thought required reading for spouses of patients dealing with uncertain chronic medical conditions. While the book doesn't overly dwell on this aspect, that makes it strike exactly the right balance. He is always there supporting when needed in words, deed, and some times just silent support. This book would be a very good book for a couple to read as they come to grips with what MS may mean.

5.0 out of 5 stars Not just for MS patients and families, April 27, 2012
By 
In "MS: An Enigma," author Terry Palardy takes a reader along with her through the process of her MS diagnosis. This book, however, is not just for MS patients and their families, and it's not just a list of medical tests. Readers will relate to many of the author's experiences: childhood memories, combining work days with family and illness responsibilities, and caring for aging parents. Terry's writing style is easy to follow, and the book is well-edited. I read the ebook edition, and was happy to find the pages well-formatted.

From the first chapter of the book, Terry is completely transparent with her readers, inviting them to share the emotion and frustration of the moment. She also shares the support she receives from her husband, Rick. The author does not separate descriptions of the illness and treatment from her daily life, and instead tells a story.

In this book, it's clear that a diagnosis is not an event with a date that can be marked on the calendar, but rather a series of moments that begin early in life. Terry begins with moments in her childhood, and her writing is engaging as she creates in herself and her family complete characters for us to follow. Rather than simply list medical tests she was subjected to, she tells the story of how the test impacted her work day and how the constant interruptions affected her emotions. A careful description of her MRI experience will encourage anyone about to go through the same test.

Terry ends her story with a treatment experiment, and I hope she revises the book at some point to include her results. As the author is about the same age as my own mom, I was also looking for her experiences telling grown-up kids about her diagnosis and their reactions--but perhaps that is a story for them to write.

True to her academic roots, Terry ends the book with a section of reliable resources readers can turn to for information about multiple sclerosis, along with a list of online forums readers can go to for a community of encouragement.

5.0 out of 5 stars Medical Trials Framed in a Loving Family Portrait, April 4, 2012
By 
Amazon Verified Purchase(What's this?)
This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)
As avid readers know, the quality of books in the literary landscape has changed, but Multiple Sclerosis, an Enigma by Author Terry Crawford Palardy renews our appreciation for the written word. Author Palardy skillfully composed a well-written book and conveyed a story of compassion and resilience for her respected readers.

As a former teacher herself, Author Palardy did not ask the reader to overlook typos, or disregard poor sentence structure. Instead, the book is a well-formatted, fluid glimpse into the sometimes challenging, always endearing family she so eloquently introduces to us.

We learn who the self-described author and her family are, not by what she says, but by what they do. She doesn't tell us within quotes, that she and her spouse love their parents instead she tells us that they visited them daily, sacrificed their own finances, yet continue to smile when visited by a memory of their now dearly departed parents. Her wonderful husband doesn't spout I love you's either, rather the author tells us that he carries her purse without hesitation. In addition, she doesn't 'tell' us that she's a dedicated teacher, but she tells the willful doctor that she's happy to see him...anytime outside of school hours. We experience the compassion and commitment that exists within this family from the deeds so proficiently, yet humbly described.

Yes, there is talk of doctors, diseases, diets and medications, but it's framed so very well in a magnificent family photo.

Multiple Sclerosis, an Enigma, is a story of unconditional love shared over decades between generations of two families joined by a marriage strengthened from reverence to their marital vows.

It's a worthy investment for the serious reader who will immediately share this title when asked, "Have you read any good books lately?"



Poetry to Share, Vol. I

5.0 out of 5 stars Great poetry, November 5, 2011
By 
This review is from: Poetry to Share, Volume 1: Come walk with me, and we shall see... (Paperback)
Every poem in the book was thought-provoking and inspirational. Quick to read but very enjoyable just the same.
Great writing.

Georgetown at the Turn of the Millennium

5.0 out of 5 stars Love for the town of Georgetown, MA, April 21, 2012
By 
This review is from: Georgetown at the Turn of the Millennium: When the Calendar Was Turning Twenty-One (Paperback)
Georgetown at the Turn of the Millennium written by Terry Crawford Palardy

The author of this fine book has looked beyond her windows into the small New England town of Georgetown where she grew up. Through her eyes, those of us who do not live in Georgetown get a glimpse of idyllic small town life.

Terry describes a scenic town full of nature's attractive seasonal gifts. But more importantly, she describes a town that has a deep commitment to the people who live there. It is a town made up of volunteers who run the fire stations, coach children's sports, and conduct Town Governance. It is a town that values the wisdom of its elders and has great hope and faith in its children who will grow up and offer new, creative, and vibrant changes that will make Georgetown even stronger.

As an accomplished writer, Terry Palardy encourages us to consider the "gifts" within our own communities.


5.0 out of 5 stars Gerogetown or Norman Rockwell? November 23, 2012
By Liset
Format:Paperback
I had read Mrs. Terry Crawford Palardy's memoir book "Multiple Sclerosis, an Enigma" and was at an ahh by this authors writing. Having been diagnosed myself with MS years ago and was surprised to see that it is so much more than an MS story;it has compassion, love, hero's and evil all wrapped up. Which brought me to "Georgetown at the Turn of the Millennium: When the Calendar Was Turning Twenty-One". This book was completely different from the previous book I had read by the Author. It lifted my spirits and took me back in time to what life was and what it should still be with the values of community, friendship and support. I truly felt as if I was in a Norman Rockwell portrait. After reading this book you will see that the Norman Rockwell era has not ended and still exists that community push and pull of togetherness. This also shoes that another famous Author; Hilary Clinton that wrote the book "It takes a Village" was on to something. I highly recommend this book and it is a PERFECT book to give for the Holidays!


And these two books are waiting for readers to enjoy/review what they have to offer. Both books can be previewed at Amazon, and they are also 50% off at Terry's webstore.

 Teaching Vol. II, Stories Reflecting the Classroom



















Poetry to Share, Vol. II, honoring the work of writers, artists, teachers, and Mother Nature 
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Wednesday, July 4, 2012

Reputable Medical Websites

We have the internet at our fingertips. We have a medical condition that we know is a topic of some websites. Which sites do we choose? Which sites do we trust? And do we share with our doctors what we find online?

Today's internet users have to take ownership of their responsibility in assessing their travels through informational sites. This obligation remains whether one is seeking medical information, historical data, or current event coverage. Every website has a webmaster, an editor or program director who selects what will be uploaded to their page(s). All have their own agendas.There are plenty of search engines available to help you find a plethora of sites dealing with the topic you are researching: Bing, Google, Yahoo, and more. Innumerable data bases exist, and consumers must learn how to create a library of trust.

What are the keys to unlocking this treasure house of information? Begin with the url (the web address) and start at the end: most will end with .com, .org, .net, .gov, .edu here in the United States. Students are taught early to expect a .com site to be one sponsored by someone with an agenda, true or not, and .net as being like a co-op of users with a common interest. Urls with the suffix .org are most often linked with organizations like museums or other private institutions that have a reputation to maintain. Those with.gov are government sponsored which, depending on one's political outlook, may be a positive or a negative. And I learned soon enough as a teacher leading young adolescents through research projects online that the suffix .edu can be widely variable: .edu may mean it is hosted by a college publishing highly qualified, scholarly articles, or it may be a classroom site hosted by an elementary school and showcasing third grade student compositions with factual errors, neatly typed.

Medical issues are also addressed in a wide range of sites, and so may be no more reliable than one patient's personal journal, complete with singular bias, or a site filled with many chatters sharing their experiences and differing amongst each other in their replies. These sites may be both confusing and misleading to a person recently diagnosed just trying to 'get a handle' on the terminology and stages of a condition. Other websites may be owned and thus influenced by the large pharmaceutical companies producing and marketing specific solutions at great expense toward greater profits. Most medical information sites will responsibly remind readers to always check with their own doctors before accepting any advice or practices sponsored by the site.

I've learned a great deal about multiple sclerosis by reading at the National Institute of Health's site. I've also learned a lot of vocabulary, and gained second hand knowledge of many medications, at the NMSS message boards; I'm careful, though, to remind myself that they are personal stories that differ widely in viewpoint and in credibility.

Many doctors don't want to hear what you've learned at a website, reputable or not. They may be offended that in reading there you are less dependent on their professional knowledge. Yet they haven't the time to spend educating you about your condition at the level of detail that you may wish to be educated. Nor do they expect you to take medical courses at a university. This lack of professional information sharing within a doctor's tight schedule is what leads to patient frustration and reaching out to the internet for further information.

There are new sites appearing almost every day on every medical condition. Doctors haven't the time nor the interest in screening those sites for their patients. But they may have experience and knowledge of some sites that they believe are reputable, and it doesn't hurt to ask for a list that you can turn to when the doctor is not available.

The articles below are sites that I have found trustworthy, and have shared at my Facebook page for others looking for online resources. But I, too, must ask you to always check with your own medical team before choosing to follow a practice learned online.

And I'll remind you to go to my online store, or CreateSpace, or Smashwords, for a 50% discount on my book, Multiple Sclerosis, an Enigma. The links will be listed below the related articles.
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